Friday, January 23, 2015

Rainbow Baby

Jan 10th 2015 11DPO (days past ovulation) I wasn't expecting much that morning, my cycles had been wonky and I was pretty sure my lutheal phase was short. I was preparing to go talk to my doctor after my period came for Clomid. Somehow as I dropped the urine on the 88c Wal-Mart cassette test I started to see a second faint pink line!! I had this whole idea on how I would surprise my husband with the news when we finally got a positive, but all of that went straight out the window. I said with total excitement and shock "Babe, I swear there's 2 lines!" I came walking into our bedroom from the bathroom carefully holding the test flat in the palm of my hand so it would develop properly and showed my husband. "I see it!!!" he proclaimed but I still wasn't fully convinced. So naturally I took another test this time an answer strip and as the first test sat the line got darker! A few minutes later I notice the answer strip has a faint second line! Tears started running down my face as I looked at my husband "We did it babe, we actually did it. We're gonna have our sweet rainbow" That moment of complete realization that I was actually pregnant again, one month before Austen's angelversary was so surreal. 2014 for us no matter the good that did happen, will always be the year our baby died. The pain and torture from losing him was almost too much for me to bare. There were times where I didn't think I could go on living without him. This baby, our precious rainbow is way more than just a child. This baby is our miracle and the reason I can finally feel a little peace, the brightest light like a lighthouse leading me to safety. This child is my hope for a future filled with so much love and laughter. I want to be a mom to a child I don't have to give back, I've always wanted to be a mom. I have so much love to give that my heart has ached for a child to give it too. I KNOW how big of a blessing our baby is. I know women who are still struggling to conceive and it really breaks my heart because I want so badly for all women to be able to have the experience of being pregnant with the greatest gift in life. They deserve it and I pray to God every night to bless these wonderful women with a child. I want them to know they have my love and support. I know what it's like to battle infertility, it's TORTURE. Every month you get filled with hope then it's taken away. Having to go through that month after month year after year took a huge tool on me. I have PCOS & Thyroid disease. It took us 12 years to conceive Austen. I won't take a single second of this gift from God for granted for I know what it's like for it to be ripped from you in the blink of an eye. I'm so scared. Every cramp I run to the bathroom just praying there's no blood. It's really hard being high risk but worth every single second.

My first ob appointment is Feb 2nd. One day before the day we lost Austen a year ago and at the same hospital. It's going to be hard walking in there again but also a blessing because I'm walking in there with second chance. I just pray everything is ok with the baby and when we get our ultrasound everything will be fine and I can finally breath a little. I'm not sure how far along I am because as I said my cycles have been wonky and it appears I have a slight lutheal phase defect but I don't know for sure because I got pregnant and can't say if AF would of been adjusted from the supplements I was taken. Based on my cycle length and last period I'm due in September and I'm 6 weeks today 😁 We'll know for sure once we have our first ultrasound! It could be off by a few days.

Updates from my last post
1:) I got a double (Transabdominal Cerclage) aka TAC placed by Dr Arthur Haney on October 9th 2014. He placed two bands!! I feel like my cervix should be in Marvel and have some sort of super power

Thursday, March 13, 2014

His Name Is Austen Jase

Do you want to know what pain is? The real true definition of pain? Pain is holding your baby boy as his skin grows cold and life leaves his little body. Pain is when there's nothing they can do to save him because he's too premature to attempt a tube. Pain is knowing there was nothing wrong with your child at all, but it was your body who failed him. I've decided I hate my cervix and all it's insufficiency. My little boy, his name is Austen (yes after Jane Austen herself) and he's a sweet angel in heaven.

Austen was born at just 18 weeks 6 days on February 3rd, 2014 at 10:11 am. He weighed 8oz and was 10 1/2 inches long. He was tiny but so perfect in every way. My sweet baby boy looked so much like me, he even had the same identical separation I have between my toes =]He was my little miracle. I have PCOS and thyroid disease so conceiving for me has been difficult. I unfortunately went many years without medical and had no idea why we weren't able to conceive until I finally got insurance and seen a doctor who was willing to do whatever testing to find out what was going on. I was put on metformin, got my thyroid under control, made dramatic changes to my diet and lifestyle resorting in almost 40lb weight loss and a few months later I was pregnant. After years and years of trying and every month getting a negative result on a pregnancy test I finally got two lines. I can't even explain the feeling I had the moment I seen a positive result. I guess if I could try I would describe it as Marcus does on the show "About A Boy" as Total Exuberance. My husband and I planned a whole life in those few short months. We imagined trips to the zoo, his first day of school, what things he would like, what he would look like, cuddling him until he fell asleep, his first encounter with our fur babies, taking him to have a Happy Meal, trips to the movies, trips to the park, all the activities we would do together as a family... We planned a life with our child, everyday and every minute of his life, we planned to spend with him watching him grow with each passing year.. we never planned to lose him. In our hearts, our little boy was going to grow up not die in my arms. We didn't even know he was a boy until I delivered him.. We were a few days shy of our big gender ultrasound when it happened.

18 weeks 5 days.. It's Super Bowl Sunday and I just finished watching the game and hubby just got home from work. I had been having a heavy discharge but chalked it up to normal pregnancy stuff. Until I went to the bathroom and wiped and saw pink tinged mucus. I immediately called my OB who told me he didn't think it was anything that required an immediate ER trip, just to come in to a visit in the morning and he'd check me.. Fast forward about two hours later. The mucus is now tinged with red streaks. RED BLOOD. Definitely not normal, so we head to the ER. No serious pains or anything so I'm thinking I lost my mucus plug but I've read they regenerate, or I have some kind of infection. By the time I get checked I'm told I'm 2-3 cm dilated and given two options, either wait and see or sign termination papers!! UMMM TERMINATION PAPERS! NO way! They put me upstairs in a room where I'm there maybe an hour or two at the max and I start having a lot of pressure on my tail bone actually tmi but I kept feeling like I needed to number 2! I call for a nurse and tell her this and her facial expression is not good and she has a doctor come in who tells me she needs to check me. After checking me she tells me I have no cervix whatsoever and I need to be moved to labor and delivery immediately. I think that's the exact moment I went into shock. I started shaking uncontrollably and feeling extremely nauseous.. It was real, We were losing our baby :'( I kept having to pee and while going I felt liquid that just coming and coming. I was given pain meds at that time and I don't know how much later but I was asked again if I wanted an epidural (the first time I said No and I'm not sure why, fully aware me would have said yes straight away) So my OB recommends I get one incase later I have a retained placenta (a WHAT?!) I receive my epidural and I swear it went so fast and I was ready to push. After delivering Austen the doctor who was my OB's relief has this concerned look on her face and that's when I knew something was wrong. My placenta was stuck and she needed to remove it manually (with her hands) so she begins to rip it out of me.. I explain it like that because that's exactly how it felt. It was so incredibly painful and traumatizing. I yelled for my husband to leave because It wasn't coming out and the pain was so intense. I just didn't think that was something he should have to witness. I didn't want him to see me in pain like that, I was worried about him and how it might effect him. I think my epidural had begun to wear off because I felt everything. The doctor makes an emergency call to anesthesiologist to come give me more pain relief. At this point she has a very concerned look on her face and starts yelling for people to come. Next thing I know there's a bunch of nurses, people with these hats on that are tied in the back, a nurse with a ultrasound machine.. She's (the doctor) telling the anesthesiologist to give me something very strong and he's telling her he gave me as much as they give a patient for a c section, she tells the nurses to grab my legs, people are pushing on my stomach, she's ripping my placenta out piece by piece and I get to a point where I'm just so tired. She tells me I might need emergency surgery to get the rest out and there are risks.. HUH?! So I find strength from who knows where and I tell her to keep going. I calm myself somehow and finally she gets the last piece out.. I made the mistake after and I looked down.. there was blood everywhere and I mean everywhere. I guess I had started to hemorrhage. All I wanted was to see my son. By the time I finally got to hold him he was fighting to stay alive. My husband was able to see him moving his legs and hands, I unfortunately was not able to witness him with that much life due to my placenta complication. I held him, told him how much I loved him, kissed his tiny face, and prayed to God to allow my parents and my husbands grandpap to come down from heaven and carry him home to Jesus. He passed right after that. I could feel my moms presence, I knew she was there and he was going home with our Father where he would never have to feel pain, shed no tears, and have eternal life looking down on his mommy, daddy, and family.

I've stood over my mothers hospital bed as breast cancer took her last breath. I stood over my father's hospital bed as he was strapped down, completely mentally gone and pulling his tubes out and dying from lymphoma. I've witnessed more traumatizing things in my 30 years of life then most have in their entire lives. BUT nothing compares to losing your child. No one gets pregnant to leave a hospital without their child.. NO PARENT should ever have to go to a hospital pregnant and leave with their arms empty. The pain is so extreme sometimes I don't even know how I breath.. You have to sit and watch all your pregnant friends deliver healthy, full term babies and the joy they have being a parent and you don't get to have that.. you don't get to hold your child in your arms.. Then there's the friends who are still pregnant and having baby showers, buying baby things, taking belly shots.. and your there crying because that should be you too. I'm EXTREMELY happy for all our friends and family but I'm not gonna lie and say it doesn't make me miss my son and what I should of had. It's painful to see everyone so happy when your heart is hurting and aching for that same happiness.. It's hard. There's not a single second of the day that I don't think of him, miss him, and ache for him. It's a good day when I can actually fall asleep at night (it's very rare these days) Most nights when I lay my head down all I can think about is him and that when I wake up it's another day I have to spend without him.. The only thing helping me is the research I've been doing on Incompetent Cervix. Sure I tell everyone I'm ok but really I'm dying inside. If it weren't for my drive and my desire to beat Incompetent Cervix I'm sure I'd be in even worse shape. The hope I have keeps me moving forward somehow. You can never let anything defeat you. My next child will come home in a brand new car seat with every kind of safety thing they sell. and when he or she is old enough I'll tell them all about their angel brother who watches over them from heaven with their grandparents and family.

I've done my research and found what surgery I think is best for me. I'm going for a surgery called a TAC. Transabdominal cerclage with a surgeon in Chicago. This surgery gives you basically 100% chance of making it to full term or very close. All I'm waiting on is my insurance to approve it. If everything goes through, May 12th I'll have it done and I'll never have to worry about losing another child due to an Incompetent Cervix. This surgery is performed prior to pregnancy and is permanent, so we can have as many children we want and each time it still has the same percentage of success. I have my heart set on this surgery so I'm really praying everything goes through.

Well if you read through all of that I greatly appreciate it. I just had to do this, had to tell my story.. Austen's story. I leave you with a quote

"There is no foot so small that it cannot leave an imprint on this world"

Thursday, April 18, 2013

Hyperthyroid

January 19th 2013 my life was altered forever. It was the season opener of the Pittsburgh Penguins, the lockout had ended and hubs and I were both so excited to finally sit down and watch some hockey. We ordered pizza for the game and as I sat there and ate I realized my heart was racing and I thought I could just take an asprin and be fine. You have to realize I had gone to ER'S over the years with a racing heart only to be sent home with no explanation because I didn't have medical insurance. This to me wasn't out of the oridnary, but then it got worse. I downloaded an app to test your heart rate (imagine that! an APP to monitor your heart rate. crazy but amazing!) it revealed my heart rate was rather high 120 and I was having pain in my chest and difficulty taking deep breaths. I was full on panicked which only made things worse. This time I decided to go to a hospital I had never been to hoping this time would be the time someone cared and wouldn't just send me on my way because I didn't have insurance.


They took me back right away. My heart rate was upper 120's by the time I got there. I was hooked up to an IV almost as soon as I arrived in the back, an ekg for my heart was ordered, and my vitals were being monitored. I remember clear as day looking at my husband and his eyes were big. He was staring at the heart rate on the monitor it was 138. I almost wish I wouldn't have looked because I'll never forget that feeling. All those times I ended up at the ER it was NEVER that high. The doctor came in ordered blood work. He asked alot of questions and was feeling around my throat. That was new, no doctor had ever focused so much on my throat and my eyes. He kept checking my eyes. I had an xray done now I can't recall why they did the xray but they did. After several tests the doctor comes in and tells me I have hyperthyroidism. Im like huh?

It took a moment to sink it but then I was like.. Wait I was concered about thyroid problems because it runs in my family.. I had another doctor at a clinic test me for thyroid and was told I was FINE. I WAS NOT FINE. You have to understand I went YEARS upon YEARS not feeling well, not understanding why I didn't feel like myself. I became severly depressed, I had a bout of bone pain so bad I couldn't get out of my bed to go down my stairs. I went to an ER only to be asked why I was there.. WHAT was my emergency. I could barely walk, I was in so much pain I couldn't lift a carton of milk, couldn't open a can, I couldn't get down my stairs and they made me feel like I wasn't sick enough to be there. I'll never forget that. I walked out bawling. Yes she did say they would still see me but I felt like I wasn't wanted or good enough to be seen after she sat there and looked me in the eye after watching me struggle to walk in and asked me WHAT MY EMERGENCY WAS. That moment in my life I was so low.. Years I felt so tired all the time I could never hold a job. I'd make it 6 months at the most because I became so exhausted from work and taking care of my home I literally just burned out. I tried so hard to be normal to hold on, to not complain, to keep going. I knew I didn't have the energy of a regular person, It made me feel like I was lazy. I couldn't understand how everyone else could do it but I couldn't so I'd push myself through being tired until I couldn't push anymore. My husband had always told me I didn't have to work that I did enough work around our home already but I wanted to help money wise and felt bad. My husband made enough to take care of us. Maybe we didn't have it all but we had what we needed and a little of what we wanted. Im a old soul. I love vintage items, thrift stores, and antiques. I don't spend very much on what I buy. My husband is happy about this lol I'm not a coach buying, label wearing kind of girl. I was raised very old fashion so we could afford for me to stay home take care of him, our home, and our dogs. I've worked off and on our entire relationship until 2012 when I really started to feel awful. I'd work until I couldn't and then eventually go back.. wash repeat kind of thing.


So here after all these years of not feeling like myself, feeling so tired and so run down, being depressed, feeling like a failure because I didn't have the energy to be a go getter I finally had an explanation. I'm NOT a failure I realized, I'm a sick person who had suffered for so long because I didn't have health insurance, had I had insurance all those ER doctors would have done more to figure it out. But this one doctor cared. He did test after test until he figured it out. This is where God comes in. If you don't believe in God that's fine I respect your beliefs but I do and this is my belief.


My husband got into a company that has amazing health insurance, way better pay, more room to grow, retirement and all these amazing benefits. We couldn't afford insurance through his old job and I couldn't work full time to get benefits anywhere. No one would have accepted me through a bought plan either because of my pre existing conditions. I also have asthma and scoliosis. This job was a blessing from God. At this moment in my life where I've just been diagnosed with an incurable disease this Job comes along and I have insurance to get the treatment I need. That's not a coincedence.. I was diagnosed JAN 19TH he got the call from the job JAN 11TH. AMAZING! I'm so very grateful for this amazing blessing. Our lives changed overnight. He's going to make more than we ever imagined. I mean we aren't going to be wealthy not even close but we'll be comfortable with the amount he'll be making. As I mentioned him and I don't need much to be happy so we'll end up saving which we haven't been able to do. We're so excited for the future now (: No more worrying about how we'll be able to afford doctor visits for me. That's like a huge weight lifted off of our shoulders.

So for now I'm done but in my next post I'll talk about my journey since being diagnosed. What my everyday life has been like since starting meds.

Thursday, October 20, 2011

Everyone must take time to sit and watch the leaves turn

I got a few days off, and then Sunday I'm leaving for an overnight stay in Erie. Last night I was so tired, I ended up sleeping 12 hours. I woke this morning feeling like an entirely different person! Waking up at 3 or 4 am for work is rough, but especially when your not used to it!

Yesterday we were in Greenville, Pa. It's not very far from Ohio, where this man at an animal sanctuary decided to let all of the animals lose and then commit suicide. There literally was lions, tigers, and bears roaming around. I'm just thankful none of them made an appearance where we were!

You have to wonder, why people do the things they do... They had to shoot and kill all the animals. There were an estimated 60 animals on the loose. Can you imagine 18 tigers running around your neighborhood? I'm not even sure how many lions there were, but it had to of been a pretty high number as well. It's just so sad that all of these animals lost their lives, but I understand the police had to do it. You can't leave exotic animals roam around like their domestic cats. So sad :[

Well, I got lots to do around the house so I better get to it! I've been procrastinating all day :/


CNN story about the animals | Ohio sheriff: all animals believed accounted for

Saturday, October 15, 2011

As the first leaves change their colors for autumn's big show, wewelcome the cool crispness in the air.

Autumn is in the air, and on the ground :D I couldn't be happier. A perfect life, would be living somewhere, where it's autumn all year long!

I finally got out to take photos! I have to admit, it's been awhile :/ I had a lot of fun photographing autumn at it's finest lol

I started a new job as a mobile medical tech. It's going well. I really enjoy knowing I am helping people ;D All this week I have to be up at 3am.. THAT I don't like lol Who wants to be up when it's still dark, and the crickets are still chirping?! If coffee didn't exist, I'd be in all kinds of trouble lol

Wel, got lots to do today. Enjoy autumn, and all her beautiful colors ♥

Friday, August 26, 2011

One set of footprints

So much has been going on in my life, that I haven't been online to update. Our Noonie (grandma) went into the hospital a few weeks ago with shortness of breath, and they found she had mitro valve prolapse. Surgery was scheduled, but due to her blood pressure and breathing being so bad they had to do the surgery earlier than planned. Everything that could of went wrong did go wrong. The surgery was supposed to last 4 hours, it ended up lasting 10 hours. The complications were so bad, they didn't think she was going to make it. The Lord had other plans (: Little by little she improved. She went from having as many as 6 machines hooked up to her and life support, to nothing but oxygen and some medications she is now taking on her own. She was on dialysis because her kidney functions were so bad, now they took her off of it completely!! The nurses are beside themselves. They just cannot believe how much she has improved. They told us, they honestly didn't think she was going to make it. I knew she would. I believed in my heart that God would lift her up and carry her through, and he did! I am just so grateful to God that she is with us today. She's leaving ICU on Monday or Tuesday to go to a rehabilitation center. From not walking for so long, her legs are very weak. They said with the rate she has improved already, that she may only need two weeks of rehab. It's just amazing to see her sitting in the chair talking and smiling and just being herself. I can't even begin to describe how fortunate I feel. I've witnessed the power of God in front of my eyes, and it just feels so overwhelming and amazing!!

Thursday, July 7, 2011

thrift store adore

afternoon tea by *autumnlove
afternoon tea, a photo by *autumnlove on Flickr.

So, one of my favorite things to do is thrift store shop. Everyone who knows me, knows that I have an old soul. I should of been born with Jane Austen lol Now THAT would be pretty amazing. Where was I going again? Oh yeah, thrift stores!

My husband and I stopped by a thrift shop, and I found this adorable pitcher. Truth is, I think it's for syrup, but I really don't care because I'm using it for tea!! It's cute, and I've never been one to follow the rules. I'll take a vase and use it as a pitcher, or even a glass lol I find cute things and make up my own mind on what I think it's purpose should be!!! I really enjoy the cork and the tiny spout. If it didn't have that big cork, I don't think it'd be as cute. The cork pulls the entire thing together :) I'll consider this on my list of "great finds"

Onto other happenings in my so called life. Wow I really am in a "mood" today! Anyway, buggie is getting sooo big and so fat. She will not stay out of the garbage for nothing. I'm not gonna buy a can with a lid either, because I want her to learn NO. She's such a brat, but she's the cutest brat ever :) Love my little bug ♥

I've been trying to work on my website, but every time I sit down to do some work, I seem to get side tracked every which way. I really would like to have it down within the next two weeks. Guess I'm gonna have to sit down, ignore my phone, and do the work! lol

Well, got tons of things to do before hubby gets home.. peace, love, and shutter clicks!

With Love,
C